There seems to be a wave of shock and disbelief concerning my current medical status. As most of you know, just a few months ago I was actively engaged in my crazy life with Lilli, Chloe, Owen, Jake, Hunter, Tucker, RICH, work, the windy hill fashion show, friends, friends, friends and lots of other stuff! Thanksgiving and Christmas were upon us and everyone started to get back into the swing of life after the first of the year. Life seemingly ebbing and flowing as it should. Some people knew I had been having some pretty big pain issues involving my head and neck, but when Cara's email came out on Thursday, February 5th all hell broke loose amongst my peeps!!! And boy do I have a lot of peeps! Some even thought Cara's email was a joke.
The month of January was crippling for me and I had become unable to function in normal daily routine - talking, swallowing, sleeping, working, reading, driving. The doctor appointments we getting closer together and I was in need of help as I couldn't drive. Rich had just started a new job and I was reluctant to have him take so much time off. In stepped Big Bad Cara to sound the ALERT! And sound it she did. The really beautiful thing is Cara has walked this path before with doctors and pathology and scheduling and is incredibly organized and doesn't mind saying the hard things in the right way with the right intention. So, yes, on occasion she will be speaking for me, for Rich, for our family. And yes, sometimes she will be the person saying please give Donna some space as I am not good at saying that myself.
The good news is I am on new pain meds which are working pretty well. I am still unable to drive. Due to the location of the skull base tumor, talking, swallowing, etc. is difficult. These very normal activities cause tremendous stress on my skull and the pain medicine losses its effectiveness. Please understand that I am working hard to limit myself - the act of act speaking and being in an environment where
there is stimulation and other noises are very difficult
for me. Even a few hours of verbal communication can start an onset of brutal
evening pain that leaves me helpless. Texting, emailing and blogging are relatively easy right now and I am enjoying reaching out his way. I switched from the caring bridge blog that Cara was maintaining and I am now maintaining this one myself!
The outpouring of love from Cara's ALERT has been mindboggling!!! How can I be so loved? How? I really don't have words!
5 comments:
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Watching your updates daily. Praying for you!
Sending massive hugs and I'm praying for your total healing. <3
Thinking of you everyday and sending you lots and lots of love and prayers.
How can we not help but love you, Donna!!! You are always so full of energy, laughs and happiness!! I can't even begin to imagine how you are feeling.... I imagine every known emotion is going through you. I know that the worst of times seem to bring out the best of times, too. Your friends are all so unbelievably supportive and the love is magnificent..... I am sure that IS God's love! If only I could just make you feel better...... this is harder than the "foot" call we had.... (facing North instead of South)!!!! How many times did you and Peggy and I pass each other going back and forth to the ambulance!!!?? Take care, my dear! I love you!
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